Working toward a solution
The NAAMS Registry was purposefully created to benefit African American people, who have not historically been adequately represented in efforts to improve the lives of people with MS. Too little is known about how MS uniquely affects African Americans, nor is there enough relevant information on MS available to African Americans seeking resources. We hope that participation in this Registry and engagement with the African American community affected by MS will be powerful tools in shaping a solution.
The NAAMS Registry was created by a group of African American neurologists who are nationally-recognized experts in MS. Our goal is to improve care for African Americans with MS by increasing patient and healthcare provider knowledge, while improving access to the best care. The Registry also aims to increase opportunity for African Americans interested in being part of clinical trials, so that the therapeutic needs of African Americans with MS are better addressed in research and medication development.